Tuesday, April 26, 2011

Infertility = Shame

Resolve Blog Challenge

The Merriam-Webster Dictionary defines shame as: "1: a painful sense of having done something wrong, improper, or immodest  2: DISGRACE, DISHONOR   3: A cause of feeling shame  4: something to be regretted"

Merriam-Webster Thesaurus:
           Synonym(s): "DISGRACE"
           Related Words: "chagrin, embarrassment; guilt, mortification, self-reproach, self-reproof"

How does it make you feel to read those definitions, synonyms, and related words? Who are you? How does this relate to you?

You may be someone who is not affected by infertility. You may be someone who is not affected, but knows someone that is living with infertility. You may be someone like me; someone that is both directly and indirectly affected by infertility.

No matter who you are, we all need to be aware of each other and the effects that myths can have. I know that people tend to have good intentions when giving their "advice" when it comes to my... shhh don't say it too loud or you may shock others... INFERTILITY PROBLEMS. Myth: It is shameful to talk about infertility. It is not shameful. Infertility is just misunderstood, misconstrued, and under-talked-about. We should not, and cannot keep the secret taboos of past generations bottled up. Infertility affects millions, we are not alone, and we should not stand alone. It does not need to be everybody's business - that's up to you who you tell what - but we should also find support; it's hard. I am glad that I have a close friend, a cousin, and blogs by people that I can turn to for support - as they too have suffered some form of infertility.

Myth: Infertility = Not being able to get Pregnant; Miscarriage does not count. This is so classic; especially for me. I think this myth comes from how we both define and perceive infertility.

Dictionary defines infertile as: "not fertile or productive : BARREN...."
Thesaurus: Synonyms: "STERILE, BARREN"; Related Words: "depleted, drained, exhausted, impoverished"; and of course it also gives the opposite, the Contrasted Words: "breeding, generating, propagating, reproducing";  Antonym: "fertile".

In the King James Bible, we see the word Barren used whenever referring to mainly a woman that has not been able to have a child(ren); with a few references toward unproductive land. You can find this term in these chapters:
                       Genesis: 11, 25, 29, 30 ; Exodus: 23 ;
                       Deuteronomy: 7 ; Judges: 13 ; 1 Samual: 1, 2 ;
                       2 Kings: 2 ; Pslams: 11 ; Isaiah: 54 ; Luke: 1, 23 ;
                       Galatians: 4 ; 2 Peter: 1
Miscarriage is only mentioned as caused by another injuring the pregnant woman to the point of loss (Exodus 21:22). The list that has to do with the opposite is very lengthy.

I always have people "advising" me what to do, what to take, who to go to so I can get pregnant.... I don't have a problem of getting pregnant, I have a problem of staying pregnant. I suffer from multiple recurrent miscarriage.


Myth: We shouldn't talk about miscarriage, because it is shameful. Miscarriage = Abortion. There still exists societal taboos about infertility and miscarriage... which are wanting to be broken! We need to talk about infertility & miscarriage. Yes, it can be very painful and uncomfortable to talk about; but that is because we tend to perceive it as shameful. Miscarriage tends to be related to Abortion. Miscarriage is what medical professionals label as "natural abortion" - it is a natural phenomenon where the body for whatever reason ends, breaks down, and does away with the pregnancy. Miscarriage is NOT the same as forced clinical abortion.

Myth: It’s the woman’s fault. It takes Male and Female combined to make a baby. The woman is only half the equation. I have tended to blame myself for my multiple recurrent miscarriages. Nothing can be done; when you don't know what the cause is. The majority of miscarriage is unknown, a small percent has to do with multiple factors stemming from genetics.


Myth:  My husband does not need to get checked - his boys are just fine. I have not had any problems with getting pregnant, I have problems with staying pregnant... and no one knows why except God and He sure isn't telling. So in my mind, there's nothing wrong with my husband - it's all me.... he has yet to be tested for anything, but is open to him being tested.




Myth:  As soon as you adopt, you’ll get pregnant. This is another classic heard by many. Sure, so-and-so that you know actually had this happen.... but guess what? I'm not that person! I also have not had the chance to adopt... have you ever looked into adoption? The process is quite daunting... and on our recent foster care placement it was up in the air so many times, and so many times we were told it was going to adoption, then it was in the air, then the baby was going back to bio-parent, then in  the air.... urrrg!


Myth: If you see a certain doctor or take a certain herbal remedy you'll get pregnant, because so-&-so did. So what! That's not going to change the fact that every-time I get pregnant - I don't have a problem with getting pregnant, I have a problem with staying pregnant - I miscarry. Every. Time! In fact, I have been pregnant so many times, I wonder sometimes if I should bother.... but then I would be looked down upon as "giving up."




Myth: If you look into fostering, adoption, or other ways to create your family it means you have "given up" on having your own. Have I really. I spent a great day with a sibling and their spouse recently... and happened to mention fostering and adoption. The response of one of them immediately was something like this: "Well, we haven't given up on having our own." I didn't say I had given up... Just because my husband and I are open to different options of creating our family does not mean we have "given up" on having our own. No one, I think that suffers some form of infertility ever wants to "give up" - you just eventually come to accept who you are and how unique your family situation is. My husband told me some time ago that he has accepted the fact that for whatever reason unknown to mankind, we may not be able to be biological parents, and that is okay. I'm still working through the whole process.


We have a lot of negative language, that can be turned positive.... Post ways on how you and I, we, can do this; I would like to see what people think.

Infertility 101
National Infertility Awareness Week® (NIAW)




utahinfertilityawareness.com

Thursday, April 21, 2011

Cherry Truth

Whenever we think of things we really wanted when we were kids, we tended to utilize the bits of manners we decided we could utilize to get said want. One definite way was to work hard on being good, go to the authority figure, bat our eyes - to get that so cute innocent look - ask for what we wanted ending with please, with a cherry on top.

What comes to your mind when you hear the old familiar phrase: "Please, with a cherry on top."

Close your eyes and imagine with me this:

You are at an old-time fountain - a kid all over again full of excitement.
Why? Because you were so very good, that you won over the authority with the purse strings to bring you to this magical place.
This place where the stools have that fascinating swirl of the seat, and it's quirky wobble or squeak...
Where you are just big enough to reach the the counter, but not see over it...
To watch as the person on the other end fulfills the long-awaited want of...
The rush of cold melting, the sweet overwhelming taste of all that pile of sugar set before you...
A glorious mountain of Banana Split Sundae... that's right with a cherry on top, too.

I can remember what that tasted like, although I now have multiple food allergies and it has been years since I have had a banana split of any kind. Now, the bare truth is - a regular cow dairy ice cream split would be a death wish.... and way too much sugar.

The other truth is... that darned ol' cherry on top of anything is not overwhelming and disgustingly sweet as people have made them.

Cherries are yummy... but in there virgin natural state they are tart. The well-known Maraschino cherries are loaded with sugar and sweet syrup to make them super sweet and an eatable dye helps to intensify their stunning bright red color. I do not have anything against food coloring as long as it is safe to ingest.  Want to know what the ingredients are for Maraschino cherries? Go here. Want a very short history of maraschino cherries? You can read that here.

We should all know what food coloring is, but if you are curious to read an actual definition you can go here.

Let me clear something up, the dye used in maraschino cherries is Red40, not the red dye made from a red beetle; you can read about it at Snopes.com. Here at ehow.com, you can see a list of different food dyes commonly used. The FDA (U.S. Food & Drug Administration) also has some information about maraschino cherries.  For some out there, they could have intolerance or allergies to food dyes.

Thankfully, as far as I know, I am not allergic to food dyes - can I taste synthetic food dyes? Yes, I can, but not in everything.

Why am I writing about this? What does this have to do with anything whatsoever? Well, it's a couple things, really. One, do we really know what we are eating? Two, it's an analogy of sorts to the next bit of this post. What is that you ask? It is in regards to infertility... whoa, did you just read what I wrote? Yes, you did. I said it is an analogy of sorts to infertility.

How so?

Anyone who has experienced any kind of infertility will be able to see what I am saying; those that have not, remember the picture of the banana split earlier - the emotions, the taste, the sensation, the entire experience. Aside from my obvious food inhibitions, those same emotions, the sensations, the entire experience can be likened to those whom have had the opportunity to experience becoming biological parents.

Those whom have experienced infertility, but by the Grace of God have after trials and tribulations been finally able to become such, know that the banana split of parenthood is much more than the mound of sugar, and it's intrinsic flavors... oh it is so much more - perhaps even indescribable.

Finally, those whom have gone through infertility and were never, for whatever reason, were able to be biological parents know even more the interdependence of the bitter and the sweet of becoming parents by others means such as fostering and/or adoption.

The banana split is glorious to behold in the form of a family, of a baby, a child... but the cruel reality is, that you can't have the treat. Not yet... not in the way you think... not in the way you want - no matter how many cherries you ask for.... Those cherries are in truth, something else. They are super sugar coated. Life is not sugar coated, and after what I have been through in my short life, shouldn't be, at all. There are some things that I cannot share and that is okay.The truth is, cherries are in reality tart, yes there are some that are a little sweeter, but should we make them into something they are not?

Our infertility is not a problem of getting pregnant, it's a problem of staying pregnant. No one has been able to figure it out. Infertility does not make us into something we are not, but other people seem to.

We found this blog. She writes as plainly as day. I can definitely relate to her. She is a Foster Mom who has also experienced infertility; and in so doing as created her blog and is currently holding a contest for this book about infertility. Her and her husband were married only ~3 months before Kabaju and I. It is certainly interesting how the world of blogging in the world wide web/internet has found us fellows within heavily similar struggles as our own. Whether or not I am randomly picked as winner, I will definitely be looking for the book at the library. Anyone that reads this, I encourage you to do the same; and take a look at her journey. No one is alone, we only think we are - and no amount of asking please for sugared up cherries will get us anywhere. Embrace your reality, do not make it into something else. There really is a reason for everything. It is hard, I know.

Monday, March 14, 2011

St. Patrick's Day

I am going to say it early - 3 days early - Happy St. Patrick's Day.

Since St. Patty's day this year is on a Thursday, we celebrated this past Saturday the 12th of March in the St. Patrick's Day Parade at the Gateway in Salt Lake City, Utah. For some pictures follow this link.

We walked with the Utah Food Allergy Network (UFAN). Kabaju is of course our juggler, everybody loved him. I and another UFAN member got to hold the sign. We had a blast! It was a long parade and our first time going. Seems we end up in the parades lately rather than being spectators.

Wednesday, March 9, 2011

Pictures


Heeby-Jeebies

I am doing this separate post since it is a separate topic, and the other post was already long enough.

After living with knowing what my real food allergies are for 3 years, I have finally owned up to a big fear of mine.

I now own EpiPens (with a training device). That's right... I suffer from Needlephobia.

I have had this phobia for as long as I can remember. Added to that, no matter how well I can focus on something, anything else, even talking to the other people in the room (myself & the nurse/phlebotimist or my husband) I can still feel everything from them rubbing the cool alcohol swab, to them poking at my veins (which still tends to cause minor anxiety), to putting the "butterfly" around my arm to the final moment of the "prick" of the needle, and all the while, feeling the vein that is losing blood, to the blood flowing out into the little tube - to the final removal and relief of having the needle removed. Then the aftermath minor pain, the minor bruising of where they stuck me. I have learned to tell them that my veins roll, otherwise, they tend to miss, which causes me to escalate from anxiety to panic mode - not to mention the physical pain. At this point, hopefully I have not seen the needle... because I don't need that on top of cold shock. Yes, I have gone into cold shock when people have missed and have had to try again. Yes, I have had veins collapse - that really hurts and guarantees cold shock.

The typical blood drawing for testing, I have been able to do alone, because I have been able to teach myself how to try to focus on other things, before and during. Another very simple, but very important point I have learned is to tell them NOT to let me see the needle, not even a glimpse - otherwise forget it. What has been the worst for me is when I have had to get an IV. My experience with IV's have been bad, really bad, and thankfully, I have only had 3. Two (2) out of the 3 were an absolute nightmare! All of those, I have had Kabaju with me. I told him from the beginning about my worst phobia, needlephobia, but he didn't understand the extent until I got my first IV - I was sicker than sick and I still went from anxiety to panic mode, all while trying not to throw up and bury my head in his upper torso, to keep me from seeing anything and try to focus on him. He then agreed after that experience, that I was not joking.

*Shiver* Just writing this, I can still feel the aftermath ache of where they just recently stuck me. Before I picked up my EpiPens, just the thought of actually and finally getting them to carry everywhere I go, has given me the heeby-jeebies (makes me shutter, shiver, urg). Now that, I have practiced with the training device, it's not so hard to use - easy really - but I just hope if we ever have to use the EpiPen(s), that I won't feel those nerves on the side of my thigh that hurt when I used the training device. I also actually don't have the heeby-jeebies now that I have the EpiPens - but I will avoid touching their box as much as possible until I am forced to use them. The training device does not have needle so it will be used often to train family and friends - children will not be allowed to play with it - it is to train for emergency, not for fun.

For more information about EpiPens go to the EpiPen website. EpiPens are only given by a prescribing physician and a pharmacy. There are no over-the-counter alternatives. If you, or a loved one, or someone you know has an allergic reaction, but does not carry an EpiPen call 911 and tell the operator that they need Epinephrine or an EpiPen. Or, if they do carry one, learn how to use it and then make sure they get further medical attention. Do not practice with the actual EpiPen. Again for further information go to the EpiPen website, or talk with a medical professional. I am not a medical professional.

This website does not constitute medical and/or legal advise and should not be relied upon as such. All information and suggestions offered are based on my own personal experiences and individual research. My goal is discussion, feedback and further education. As an active member of this blog, you accept personal responsibility for any actions you take with the information shared. Your qualified personal physician is your most important resource for individual allergy needs.




Life Goes On

People have asked me if we're going to get another placement when Princess Frog leaves. I proceed to tell them, "No. We'll take a break first." They look at me like I'm nuts or something...

So, my analogy is this:

No sensible person that just had a hard miscarriage or gave birth would immediately turn around and get pregnant again - like the day or week or month after.

So why, would Foster Parents do the same by going through a very difficult placement turn around and take another one right away? That's just insane.

Well, we are taking a break.

Later next week will mark 1 month that Princess Frog has been gone out of our lives. She left the day she came home to us - a total of 7 months. We were her second (2nd) home - she had already been in Foster Care for 1 month.

Court was rather nuts and interesting all rolled into one and took a while. In the end, judge's ultimatum was to extend services provided by DCFS so that bio mom was given yet again, another chance - 3 more months. By law bio mom only originally had 8 months to get Princess Frog back. We happened to get the nicest judge in the courthouse that likes to give second chances despite contradicting judge's self.

So after more things going on, the GAL (guardian ad litem) [Princess Frog's attorney] and her caseworker decided to just move her in with bio mom and see whether they would sink or swim. Word is: They are swimming. I am glad that Princess Frog is doing well with her bio mom, but I also sorely miss my baby girl. She has certainly left a hole in our lives, but we are learning to move on.

We were told numerous times by the GAL and caseworker (who have been doing this for years) that Princess Frog's case is the strangest, weirdest, hardest, most crazy case they have ever had and seen. [Just my "luck".] Usually cases are a lot more smooth, because they tend to know what will happen at some early point - this case, the entirety of it, no one knew what would happen - for 8 months no one knew where or what would happen with Princess Frog and her bio mom in the end. We are beyond the end, know we finally know.... unless something else happens - which if Princess Frog for some unseen reason ends up leaving her bio mom again, she will come home to us and stay.

People have commented about why we didn't fight for her more. I'll tell you why: Foster Parents do not have the rights that Biological Parents have to their biological child(ren). Foster Parents are the child(ren)s advocate and a resource (a safe family to live with), but we really don't have much say. I have been told we do have say, but I sure don't feel like it; but maybe I just didn't know what to say or how to say it. If Princess Frog had not immediately moved in (2 days after court), we would have just repeated what we had already repeated multiple times and drug everything out longer... it was better for Princess Frog to just move and see what happened to help reduce further confusion, anger, and traumatization for her. I feel more sorry for what she has had to go through, than what I have had to go through.

Our lives have changed about every six months for the past few years - so we are used to it, and we even embrace change. Change is hard, absolutely. Change is the only true constant in life, and I accept that constant. (Yes, that is also an oxymoron.)

For those following this blog, don't be afraid to be a foster parent to someone. Fostering is well worth all the human emotions and paperwork it entails. The children are worth it! If you are interesting in Fostering or providing Respite please visit the Utah Foster Care Foundation website for contact information.

Monday, February 7, 2011

I yi yi

My how time does fly.... So, January was back and forth, back and forth, up in the air, as the ball in a major ping-pong ball game hitting all the walls, the ceiling, the floor, and getting stuck somewhere in the lost reaches of the belly of the table. That is how I would describe the case since I last wrote.

Most recent update: We have had Princess Frog the entire time. She had two day visits, and then the ball vanished in the air. We have no idea what's going on. That is the nature of her unique case... it's just plain weird and really, really hard. But she is soooo worth it.

Court is very soon. It is a very important date - this time the judge really will need to rule an ultimatum... hopefully not a 3 month extension. The case needs to end for Princess Frog's sake. She needs to be able to settle down and stabilize... and just stay put. Wherever that may be, we just pray that what happens, happens in her best interest.

I decided too, at this point to drop my second class... : ( Just thinking about it made me want to cry... just too much stress and I'm working on building my lesson plans. Another time, I'll pick it up and give it a go. For now, I'm madly working on grading the 30 (down to 20) papers that were handed to me a little while ago... since I'm a tad behind due to illness running around lose in my house. It's going to be a long week, been booked a while, and last minute too. Next week is now also officially booked full... and following will be interesting depending if we actually get to join Kabaju on a partial business trip to somewhere a little less frigged, but withing driving distance..... Ya, this month will just be more and more interesting.

All I have to say is I yi, yi! I hear Zzzzzzz's a calling me.